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A family has won the right to name their 19-year-old daughter, following her tragic death, after being denied the opportunity to pursue specialist treatment abroad due to ‘dehumanising’ reporting restrictions.

Family seek to overturn ‘de-humanising’ reporting restrictions following death of 19-year-old daughter who still cannot be named

The Nuffield Council on Bioethics report into 'Disagreements in the care of critically ill children', published today, has failed to engage with key issues that it was informed about during the review process.

A 19-year-old Christian woman, locked in a lengthy legal battle with the NHS to be permitted to go abroad for experimental treatment which might save her life, has died in an NHS hospital. For over six months she had been prevented by a Court of Protection order from raising funds to travel to Canada to join a clinical trial of cutting-edge nucleoside treatment.

In a tragic case reminiscent of Charlie Gard, Alfie Evans and Archie Battersbee, an NHS Hospital is asking the Court of Protection to authorise removal of life-saving medical treatment from a 19-year-old girl, effectively condemning her to death.